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Getting help through the NHS (what I wish I'd known from the start).

I'm not a clinician. I'm someone who spent years in and out of NHS services in Lincoln - the crisis team, CAMHS, the Archway Centre (IAPT), clinical psychologists in the community support team - and came out the other side thinking "why did nobody just tell me what to say and what to ask for?"

This page is what I wish someone had handed me when I was too scared to leave the house and didn't know I was allowed to ask for help on my own terms.

If you can only do one thing

Book a GP appointment and describe the impact on your daily life, not just the symptoms. "I'm not leaving the house" lands differently to "I feel anxious sometimes". GPs respond to function - what you can't do, what you've lost, what's getting worse.

How I would describe it to a GP (a script you can steal)

Walking into a GP appointment and trying to explain panic disorder with agoraphobia off the top of your head is hard. I've done it badly more than once. So here's a script. Read it beforehand. Print it out if you need to. There's no shame in handing a piece of paper to your doctor.

"I think I have panic disorder with agoraphobia. I get panic attacks - racing heart, dizziness, feeling like I'm going to faint or lose control - and I've started avoiding places because of it. I'm struggling to leave the house / go to shops / use public transport / attend appointments. It's affecting my ability to work / study / see people / live normally. I'd like to be referred for talking therapy, ideally CBT with a focus on panic and exposure. I'd also like to rule out any physical cause for the symptoms."

Adapt it to your situation. The important bits are: name the condition, describe the impact, and ask for what you want.

If leaving the house for the appointment feels impossible, ask for a phone or video consultation. Most GP surgeries offer this now. If they don't, say clearly: "I have agoraphobia and I'm finding it very difficult to attend in person. Can we do this remotely?" That's a reasonable adjustment, not a favour.

NHS Talking Therapies (formerly IAPT)

NHS Talking Therapies is the main route to free talking therapy in England. The service I used was the Archway Centre in Lincoln, which was an IAPT service. Here's what I think is useful to know.

What it offers

Evidence-based talking therapies, usually CBT, for anxiety disorders including panic disorder with agoraphobia. You'll typically get an initial assessment, then a course of sessions - often 6 to 12, sometimes more. For agoraphobia, the therapy should involve graded exposure work, not just talking about feelings.

How to access it

Your GP can refer you, but in most areas you can also self-refer. Search "NHS Talking Therapies" plus your area online, or ask your GP surgery for the local self-referral link. Self-referral often means a shorter wait because you skip the GP step.

What to ask for

Be specific. Ask for CBT focused on panic disorder and agoraphobia, with graded exposure and work on reducing safety behaviours. If you just say "I'm anxious", you might get generic anxiety management rather than the targeted work that actually shifts agoraphobia. Use the language.

What if you can't attend in person?

Ask about remote sessions - phone or video. Many services started offering these during COVID and still do. If the service insists on in-person attendance and that's currently impossible for you, explain that agoraphobia is the reason you're seeking help in the first place. A good service will work with you on this.

Medication (an honest note)

I'm not going to tell you what to take or not take. That decision belongs to you and your clinician. What I will say is this: some people find that medication (usually an SSRI) takes the edge off the panic enough to actually engage with exposure and therapy. Others prefer to do it without. Both approaches are valid.

My main point is that you deserve a proper conversation about options. If your GP writes a prescription without explaining what the medication does, how long it takes to work, what the side effects might be, and what the plan is for coming off it, ask those questions. You're allowed to.

If you're worried about dependency or side effects, say so directly. A good clinician won't dismiss that concern. If they do, see the section below.

If you feel dismissed

This happens more than it should. You work up the courage to ask for help and the response is a shrug, or "everyone gets anxious", or a leaflet and nothing else. I've been there. It's deflating. But it doesn't mean help isn't available - it means you got a bad interaction.

Here's what I'd do now: go back and use clearer, impact-focused language. "I'm not leaving the house." "I've lost my job because of this." "I'm having panic attacks daily and I'm avoiding everything." "I need a referral to talking therapy." Be direct. You can also ask to see a different GP at the same practice. You can complain through the practice manager or through PALS (Patient Advice and Liaison Service) at your local NHS trust.

You're not being difficult. You're asking for treatment for a recognised condition. The NICE guidelines recommend CBT with exposure for panic disorder and agoraphobia. If your GP isn't offering that route, they're not following best practice.

What about waiting lists?

I won't pretend the NHS is fast. Waiting lists for talking therapy can be months. That's frustrating, and it's not your fault. While you wait, you can still make progress. The self-help plan and exposure steps on this site are based on the same principles that CBT uses. They're not a replacement for professional support, but they're not nothing either.

If you want peer support while you wait, the Discord community is there too.

Where to go next

Start a plan

Tiny daily structure when everything feels hard.

Self-help plan

Exposure steps

How I built ladders without forcing myself.

Exposure steps

Urgent support

If you're at risk or need immediate help now.

Crisis and urgent support